Missing Home

Nick and I have now been in the hotel for one week.  I can tell you that it seems like MUCH longer...to both of us.  The good news is that Nick is slowly improving each day.  Mucositis is still present, but it is getting better.  He has learned to stick with softer foods and lactose free dairy.  He's sleeping well and does still appreciate the fact that he's not in the hospital.   He's eating light, but well and we monitor his liquids to make sure he stays hydrated.  He takes many meds - both AM and PM (see below) as ordered.  I flush his catheter line on non-appointment days so we can avoid the extra visits to Moffitt.  All in all, we feel very blessed that he is doing well and is fairly comfortable.  On the flip side, we're definitely going a bit "stir crazy" in this little place with limited things to do.  It's especially challenging to think about getting out because Nick really can't be around any crowds, he does get tired quickly, and we're practically in our own neighborhood anyway.  Our hotel is located within 20 mins of Moffitt (as required), but we're also just about 20 mins from our own home. I can't believe how much we miss it.  Today, Nick and I sat down and decided that if counts are good on Wednesday and Friday, we will do our best to encourage the doc to let us go home. For now, we walk or see an occasional movie to pass the time.  It does get frustrating here, but I know that boredom and missing home is a small price to pay for getting Nick safely back on his feet.  Thank you all for thinking of us and reaching out.  Nick continues to enjoy every message of love and support.  Please know that you all are in our prayers.  P.S.  Happy Valentine's Day to my sweet Knight!  Don't worry, we'll make it back to the castle soon.  XO